Welcome to Blogs from Hyacinth of New Jersey

Helping people live with HIV, slowing the spread of the epidemic, and serving as a critical voice in the public debate surrounding AIDS in New Jersey

  • AIDS Watch 2017

    “I was homeless, using drugs and alcohol and not compliant with my medications. Through Ryan White services, I was able to get housing support, substance abuse treatment and medication adherence support. I’ve been clean and sober for 12 years and give back to the community by volunteering.” “I was homeless and couldn’t take my medications. HOPWA provided me with housing support, now I have a job and am adherent to my medications. I am lucky enough to work in the field of HIV and help others like me.” “I had a job but was late all the time because I wasn’t feeling well and got fired. I was then tested for HIV and found out that I was positive. I was able to receive the support and medical care I needed to live successfully with HIV.  My HIV status has been undetectable for 15 years, I’m married to a man who is HIV negative and am living a full life.” These are some of the stories that Hyacinth carried to our legislators on March 27th and 28th as part of AIDS Watch, a federal HIV/AIDS lobbying event. Axel Torres Marrero, Senior Director of Public Policy and Kathy Ahearn-O’Brien, Executive Director, traveled with 10 individuals infected/affected by HIV and visited with most of New Jersey’s Congressional delegation, including senior legislative staff from Senators Cory Booker and Bob Menendez’ offices. This year our asks included continued funding for Ryan White programs, protection of Medicaid for our clients, increased funding for housing programs; funding for comprehensive sexual health education, decriminalization of HIV, and continued funding for HIV prevention and research. Hyacinth is grateful for the continued support from our Congressional delegation. While we may not agree on all issues, most of our elected representatives recognize the need for Ryan White and HOPWA programs. We must stay vigilant, though, particularly around issues relative to Medicaid so that we can protect health care for all New Jerseyans living with HIV. Click here for more news from AIDS Watch

  • Looking back at 2016

    PicMonkey Collage

    Thank you for partnering with us in 2016!

    With your help, these are the things we accomplished this year:

    • provided medical care to 50 clients in Newark
    • tested 5,500 individuals for HIV
    • provided group mental health services to 200 individuals throughout our seven sites
    • prevented homelessness for 50 clients
    • traveled to Washington, D.C. with 10 clients to meet with New Jersey's entire Congressional delegation
    • and so much more....
    Together, we have taken steps to end this epidemic. We have worked with individuals at risk, and helped them to access effective prevention tools. We have helped individuals living with HIV to access the support services they need to stay engaged in medical care. And we continue to advocate for fair and responsible policies that will best serve the HIV community. We expect 2017 to be even busier. Together we will partner with you to ensure that funding for these critical services remains a priority. Together we will use every available resource to ensure access to healthcare for our most vulnerable clients. Thank you for all that you do - it's because of your generous support that we are able to do our work. Every gift - $25, $50, $100, $500, enables us to provide critical serves to those most in need. If you have not already done so, please consider making a tax-deductible gift today to help Hyacinth have a strong start in the new year.

    Click here to make a one-time or monthly gift.

    Thank you and best wishes for a happy and healthy 2017!

  • The Normal Heart

    As you may have seen around New York City or on TV commercials, there is a new HBO movie about HIV/AIDS called The Normal Heart. This movie was created by Larry Kramer and stars Mark Buffalo as writer/activist Ned Weeks. I first heard about the film through a commercial. I was then reminded about it when I went into the city to walk with Team Hyacinth at AIDS Walk New York, and again on a school trip; it seemed like there was an advertisement on every corner for The Normal Heart. The first thing that captured my attention was the title itself. In the context of HIV/AIDS it is a very powerful phrase. Read more

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